Bill Would Provide Congenital Heart Defects Test for Newborns
Here's what you need to know.
State Rep. Jesse White, D, Cecil, said Tuesday he has reintroduced legislation that would require hospitals to test newborns for congenital heart defects within 24 hours of birth.
Under House Bill 809, hospitals would be required to perform a pulse oximetry screening on newborn babies, which is a simple and painless test that places sensors on the baby’s skin to determine the amount of oxygen in the blood and measure the pulse rate.
Although some hospitals already perform pulse oximetry newborn screenings, it is not required under current law. Meanwhile, an estimated 300 infants with an undiagnosed CHD are discharged each year from hospitals in the United States.
According to the Centers for Disease Control and Prevention, congenital heart defects account for nearly 24 percent of infant deaths. In addition, about 12 percent of babies born each year have one of seven critical congenital heart defects. Newborns who are not screened for CHDs are at greater risk of death or lifelong disabilities.
“Pulse oximetry testing can help prevent either possibility by making sure newborns have the appropriate amount of oxygen in their bloodstream to detect CHDs as well as other heart defects before babies begin to show signs of a heart condition,” White said. “It’s a simple and low-cost procedure estimated at under $10, which is a bargain when you consider the lower cost of catching a heart defect early as compared to the cost and related problems of having to fix it later.
“This issue was brought to my attention by a constituent who had his newborn daughter rushed to the hospital because of a heart defect, which would have likely been detected had this test been done at birth,” White said. “We should take this opportunity to provide an easy and commonsense solution to a scary problem regarding the heart health of our precious little ones.”
The Pennsylvania Newborn Screening and Follow-Up Technical Advisory Committee last year recommended that screening for critical congenital cyanotic heart disease using the best available technology be added to Pennsylvania’s state-mandated newborn screening and follow-up panels. On March 1, the state began collecting monthly aggregate CHD data from birthing hospitals, centers and midwives.
The legislation was previously introduced in the 2011-2012 legislative session as H.B. 2263.
Chuck Kaezyk III
9:42 am on Wednesday, March 6, 2013
I can't believe that this test isn't already a SOP....seems like common sense to me
Mana
5:36 pm on Wednesday, March 6, 2013
I wonder if White even investigated WHY hospitals don't do the test....
Jesse White, State Representative, 46th District
9:59 pm on Wednesday, March 6, 2013
Mana, I know you are seemingly obligated to object to anything I say or do, but why does it matter? I have received many comments from families who lost children due to heart defects that could have been detected and treated if a pulse oximetry test had been done within twenty-four hours of birth. If you would be so willing to post your real name and contact information, I would be happy to connect you with them so you can share your apparent expertise on the subject with them.
Cecil Resident
10:49 pm on Wednesday, March 6, 2013
Why are you so disrespectful to anyone that doesnt agree with your opinion? I had no opinion about you until i found this website, but now, after i see the way you treat people.... I have a definite opinion. Cecil Townsip deserves much better than your arrogant, self- serving attitude.
Roger
8:51 am on Thursday, March 7, 2013
The question was WHY don't hospitals do the test. The question was not about what experiences, albeit unfavorable, of other people.
Real name, or no, (irrelevant) the question remains open.
Chuck Kaezyk III
9:39 am on Thursday, March 7, 2013
Cecil Resident/Roger - Please tell us, if you know, why this test isn't SOP at all hospitals. This Bill is about giving all newborns the best chance. Now, according the CDC, this test isn't 100% accurate, but shouldn't we attempt to ensure all newborns get the best care available? Who could be against that? I know I would want it for my future kid(s).
http://www.cdc.gov/ncbddd/pediatricgenetics/cchdscreening.html
Roger
1:00 pm on Thursday, March 7, 2013
Chuck, my previous post made no assertion one way or another. It merely pointed out the White response did not answer the question posed. It is a neutral comment. Why did you take it otherwise? Speaking about the experiences and request of others has nothing to do with why a hospital chooses to do the test, or does not do the test.
Since we are asking questions, tell us why government has to tell a hospital how to run their operations? Do you want fully-governed hospitals, with PA legislature making all decisions?
As somebody who wants to have the test done on your newborn, you have a choice on which hospital to use for the delivery. Do you need the government to tell you which hospital is right for you? Doctors and hospitals run tens of tests on the child and mother, many before delivery. Were all these tests implemented because the PA legislature told them they must do the test? Undoubtedly, there are tens of other tests available that could be done, some of which are done, others of which are not done. How many entries should be on that list? What defines "best care?" (your words)
If this legislation becomes law, who will enforce? Who will pay for the test? Will the test be mandatory before the infant leaves any hospital?
These are all neutral questions.
Chuck Kaezyk III
1:24 pm on Thursday, March 7, 2013
Roger, I apologize. If you didn't mean your post to be contentious, I really am sorry.
My personal opinion, and that is all this is, is If there are tests out there that could possibly save the life of even one child out of a billion, that test is worth it.
I would define "best care" as using all possible measures to ensure the newborn is healthy.
It stated in the article, that Rep White said the cost of this particular test is about $10, but is there really a price tag on healthy children? I would pay any price, beg/borrow/steal to make sure my kids are healthy and safe. I'm sure you would do the same.
Maybe you're right. Maybe this test shouldn't be mandated. My son was born almost 8 years ago at Washington Hospital. I'll have to check the paper work because I don't know if they did this test and I don't know if I was given the option to have it done. I think at the very least all hospitals, who don't do it, should ask parents if they would like it done.
You don't always have a choice on which hospital your baby is born in. For example, it usually depends on which hospital your OB has privelegdes in. Maybe that has changed but usually doctors can't walk into any hospital and perform a procedure.
I really am not trying to cause any arguments. I just don't understand why there would even be a discussion about if we should do something that could save lives of children.
Mana
6:30 pm on Thursday, March 7, 2013
It was a simple question, and yes you did answer. You created a bill based upon feeling--- right feelings on behalf of the parents ---but you did not go to a local hospital and ask if they do the test. If they don't do the test why not.
Amanda Gillooly
11:16 pm on Wednesday, March 6, 2013
Let's keep it civil, everybody. Thank you!
Cecil Resident
11:26 pm on Wednesday, March 6, 2013
Sorry, Amanda... But i think his response is arguementative, as always... I expect better behavior from an elected official and public servant. He is disrespectful to any constituent that doesnt agree with him, regardless of the fact that we pay his salary.
Jesse White, State Representative, 46th District
11:27 pm on Wednesday, March 6, 2013
"Mana" asked me a question. I provided an answer. I have no problem with reasonable questions from reasonable people, and I embrace lively debate, but how can you satisfy someone who has repeatedly found a way to be critical about anything I say or anything I do? A bill like this has real meaning to people who have suffered the worst loss possible- the loss of a child. I think it was insensitive to attack it for no other apparent reason than I'm the one who wrote it.
Prouder American
11:32 pm on Wednesday, March 6, 2013
Not so fast, "Cecil Resident". A simple click on your profile shows that every comment you post is bashing Rep. White. Given the subject of your comments, I'd be willing to bet the only place in Cecil you live is in an office at 3000 Town Center Blvd. in Southpointe.
Cecil Resident
11:37 pm on Wednesday, March 6, 2013
I've lived in cecil for 19 years... I had no concern with white until i learned of this site and saw his behavior. Now, im concerned... Many years of my wasted tax dollars.
Prouder American
11:58 pm on Wednesday, March 6, 2013
Yeah, we have a politician who regularly speaks up to defend Cecil Township by standing up to Range Resources' bullying, trying to help real small businesses by speaking up on PNC's departure and the $5,000,000 in grants for infrastructure improvements that included $3,200 refunds for every family in the Millers Run Sewage project. You're right- he's terrible for Cecil because he doesn't tolerate anonymous internet trolls.
Cecil Resident
7:55 am on Thursday, March 7, 2013
Neither one of you seem to realize that a lively debate should be about attacking the issue - not the individual. It is suppose to be about presenting facts to justify your position - not insults. Amanda wouldn't have to cool things off if you were interested in a lively debate instead of attacking anyone with an opinion other than yours. This "Anonymous internet troll" is one of his constituents that he is supposed to be representing - not disregarding.
Prouder American
9:05 am on Thursday, March 7, 2013
Cecil Resident, look at Mana's postings. He/she has been consistently critical of EVERYTHING White does, like more than a few other people on this site- none of whom are willing to step up and use their real names. That level of vitriol, combined with the anonymity of the commenters rises to the definition of 'internet troll'. So spare us all the crocodile tears and false outrage unless you're willing to sign your real name.
Amanda Gillooly
11:59 pm on Wednesday, March 6, 2013
I understand, Rep. White - and my comment wasn't aimed at you. I just like to cool things off when things get a bit...chippy. Just a reminder, folks! Thanks for commenting. If I may be of further assistance, please just email or call me!!